Organization for Autism Research

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Research PARTICIPATION OPPORTUNITIES

University of Georgia Department of Educational Psychology

Child Attention and Autism Research/Evaluation (CAARE) Lab

 

Study title: Examining relationship between stigma, self-esteem, self-efficacy and social satisfaction in young adults with autism spectrum disorder (ASD)

City, State: Athens, Georgia

Location: https://ugeorgia.qualtrics.com/SE/?SID=SV_9T7pzPaSDqUg0Vn

 

Purpose: To examine the way that having autism may impact them in post-secondary education and professional settings.

 

Who can participate: Anyone age 18 years or older who has received a diagnosis of autism spectrum disorder or Asperger’s syndrome.

 

Start date: 10/13/2015

End date: TBD

 

Details: Our study is a survey designed to examine the way that having autism may impact them in post-secondary education and professional settings. We are seeking participants aged 18 years old and older who have a diagnosis of ASD or Asperger’s Syndrome. They will be asked to complete a 20-30 minute survey to share their experience with us.

For more information or if you would like to be considered for participation, please contact:

Dr. Ashley Harrison, Ph.D
Associate Professor
Department of Educational Psychology, University of Georgia
e-mail: ashley.harrison@uga.edu
phone: (706) 542-7512

IRB Approval: ID#STUDY00002562

   

  

   

University of Northern Colorado

Greeley, Colorado

Study title: The Sensory Processing, Aberrant Mealtime Behavior, Motor, Inventory for Eating

 

https://unco.co1.qualtrics.com/SE/?SID=SV_38fzlLbwoWIk9XD

 

Purpose:

Problematic eating behaviors reported in children with an ASD appear to be longstanding and without proper diagnosis and treatment they could be life-long and can have serious health consequences.  Early identification and screening of eating problems for children with an ASD is paramount given that delayed treatment, after the age of eight, has been associated with growth rates falling below average (Schwarz, 2003) or with above average obesity rates when compared to typically developing populations (Curtin, Perrin, Tybor, & Must, 2005; Bowers, 2002).  To date there is not an eating screening inventory which encompasses the four domains that can impact nutritional risk in children with an ASD.  The primary objective of the proposed pilot study is to develop a comprehensive eating screening inventory that will accurately screen for nutritional risk by identifying and testing the four primary domains that affect eating in children with an ASD.

 

Who can participate:

Inclusion criteria will require that primary caregivers to children are between 2-8 years of age and have a primary caregiver report a diagnosis of an Autism Spectrum Disorder or of typical development (no developmental concerns).

 

Start date: March, 30, 2016

End date: January 15, 2016

 

Details: This study involves writing down what your child eats/drinks for three days and completing a short online survey.  Anyone who participates will be compensated with a $50 gift card.  Please click on the hyperlink or copy and paste it into your browser to begin. 

   

For more information or if you would like to be considered for participation, please contact:

 

Mackenzie Comstock

Research Assistant, Dietetic Intern

University of Northern Colorado

School of Human Sciences

Email:coms2334@bears.unco.edu

Phone: 303-870-5312


Nicole Withrow, PhD, MS, RD
Assistant Professor/Dietetic Internship Coordinator
University of Northern Colorado 
School of Human Sciences
Nutrition and Dietetics
e-mail: nicole.withrow@unco.edu
phone: 303-638-8022

IRB Approval: # 874111-4

  

Study title: Autism, Aggressive Behavior, and Positive Behavior Supports: Predictive Components Leading to Quality Behavior Intervention Plans

Location: SurveyMonkey 

Purpose: The purpose of this research study is to learn which components of special education teacher’s perceptions of behavior and discipline predict the ability for that same teacher to write a quality behavior intervention plan (BIP) for a student with ASD and aggressive behavior

Who can participate: licensed special education teachers in the state of Illinois who have experience working with individuals with ASD and aggression in the school environment.

Start date: November 4, 2016

End date: November 31, 2016

Details:

Sara Baillie is recruiting special education teachers for a survey.  The goal of the study is to learn how a teacher’s beliefs and perceptions affect the way they write behavior intervention plans. 

 

You will be asked to take approximately 30-40 minutes to complete all parts of an online survey. The survey can be completed anywhere that has an internet connection. 

 

Participants will be offered $20 Amazon gift card for participating 

 

For more information or if you would like to be considered for participation, please contact:

Sara Baillie
Gwynedd Mercy University 
e-mail: baillie.s@gmercyu.edu
phone: 708.293.4517

IRB Approval:81-16-IRB

   

 

3C Institute

Durham, NC

 

Study title: Development and Iterative testing of a Web-based Parent Training for Building Strategies to Improve Executive Function Skills in Children with ASD

 

Location: https://unstuckontarget.com/study

 

Purpose: The goal of this project is to develop and test an innovative and convenient e-learning course for parents that provides advanced training on how to implement the evidence-based UOT curriculum at home. Unstuck and On Target e-Learning for Parents (UOTe) will be more accessible to parents with geographical, scheduling, and/or financial constraints and will provide parents with key tools (e.g., video modeling, virtual simulations, personalized reports) to increase efficacious adoption of UOT principles.

 

Who can participate: English speaking parents of children 8-12 years old with autism spectrum disorder without intellectual disability who reportedly experience problems with planning, flexibility, and organization.

 

Start date: August, 15, 2016

End date: August, 15, 2017

 

Details: With funding from the National Institutes of Mental Health, 3C Institute is looking for parents of children 8-12 years old with autism spectrum disorder without any intellectual disability to provide feedback on a software program that provides advanced training on how to apply an evidence-based curriculum, Unstuck and On Target, at home. If eligible and chosen to participate, participants will be asked to complete reviews and provide feedback of the program modules as they are developed. Participants will not be asked to complete more than one review per month; participants could be asked complete anywhere from 2 to 6 reviews over the course of 6 months. After EACH module review participants will receive a $25 Amazon gift code. In order to see if you are eligible, please visit the study website: https://unstuckontarget.com/study

For more information or if you would like to be considered for participation, please contact:

Kelly Kocher

Project Coordinator

3C Institute

4364 Alston Avenue

Suite 300

Durham, NC 27713

Phone: (919) 677-0102 x 513

 

IRB Approval: # 3CG062 Iterative

  

  

Pennsylvania State University

University Park, PA

 

Study title: Family and SLP perspectives on family-centered care for children with ASD: Are we seeing eye-to-eye?

Location: https://redcap.ctsi.psu.edu/redcap/surveys/?s=AY9NL98XHM

 

Purpose: To obtain parents' perspectives on the speech-language services that their child with autism spectrum disorder (ASD) receives. Specifically, the survey used in this study will measure the degree to which parents of children with ASD and complex communication needs experience speech-language services as being family-centered.

 

Who can participate:

  • Parents/caregivers of children diagnosed with ASD
  • The following inclusion criteria will be necessary for participation:
    • your child has diagnosis of ASD;
    • your child produces fewer than 20 functional words;
    • your child is currently receiving speech-language services in early intervention or school setting;
    • your child has been receiving speech-language services for at least 1 year.

Start date: October 7, 2016

End date: November 30, 2016

 

Details:  This short questionnaire will take parents 5-10 minutes to complete.  The survey will ask you questions related to your child’s speech-language services

For more information or if you would like to be considered for participation, please contact:

Kelsey Mandak, CCC-SLP, MA
Doctoral Candidate
Communication Sciences and Disorders, Penn State University

kch5029@psu.edu           
412-613-8995

IRB Approval: #STUDY00004499

   

   

Georgetown Medical Center and Children's National

Washington, DC

 

Study title: “Evaluation of “See Amazing in All Children” Initiative” a.k.a. “The Sesame Street Study”

 

Location: Online study at http://bit.ly/2c4rGh9 (Note: Must access the survey by computer, not mobile device).

 

Purpose: Evaluation of Sesame Street Workshop’s autism education initiative “Sesame Street and Autism: See Amazing in All Children.”

 

Who can participate:  Parents or caregivers of children who have autism and are under the age of six

 

Start date: September 20, 2016

End date: January 20, 2017

 

For more information or if you would like to be considered for participation, please contact:

301-765-5425 or autism@childrensnational.org

If you are interested, please go to the following website:

http://bit.ly/2c4rGh9

IRB Approval: # Pro00007554

Flyer

 

Edgewood College

Madison, WI

Study title: Attachment & Parenting Style on Perceived Severity of an Autism Spectrum Disorder Diagnosis

  

Location: Qualtrics

 

Purpose: The purpose of our study is to assess the effects of a mother’s perceived parent-child attachment style as well as their perceived parenting style on their perception of the severity of their child’s autism spectrum disorder. This study is being conducted to fulfill a course requirement for Edgewood College’s Marriage & Family Therapy Master’s program.

 

Who can participate: Mothers of children who have been diagnosed with autism spectrum disorder and are between the ages of 2 and 10. We are also accepting entries from mothers with children who are neuro-typical.

 

Start date: 06/08/2016

End date: 12/31/2016

 

Details: Participants will be asked to complete a survey, which will include hypothetical case studies in which participants will be asked to answer in relation to their own experiences or thoughts on how they feel they would react or feel. Other questions would include descriptions of the various parenting styles and which of those they feel they most associate themselves with, as well as attachment styles. Demographic information such as age, race and gender (male, female, other) will also be recorded. The survey will take 15 minutes or less to complete and is fully conducted online. Answers to the survey questions will be recorded; the identity of the participant will remain anonymous.

View our recruitment letter for more details and survey links.

 

For more information or if you would like to be considered for participation, please contact:

   

Dr. Pete Meagher
Faculty Research Advisor

Principal Investigators: Olivia Gilkey-Meisegeier, Taylor J. Morrison & Joslynne Schneider
School of Nursing: Marriage & Family Therapy, Edgewood College
e-mail: petmeagher@edgewood.edu; tjmorrison@edgewood.edu
phone: (608) 663-2233

IRB Approval: #890787-1

 

University of Illinois at Chicago

Chicago, Illinois

 

Study title:

Evaluation of Early Experiences in Youth with Intellectual and/or Developmental Disabilities / Evaluación de Experiencias Tempranas en Jóvenes con Discapacidad Intelectual y/o Del Desarrollo

 

Location:

English Survey: https://goo.gl/6ofaSY 

Cuestionario en Español (Spanish Survey): https://goo.gl/j2t91K

 

Purpose:

Parents of youth with an intellectual or developmental disability are being asked to participate in this research study to better understand how events that happened in your childhood and in your child’s life are related to the physical and behavioral health of you and your child.

 

Se pide a los padres de los jóvenes con discapacidad intelectual o del desarrollo a participar en este estudio de investigación para comprender mejor cómo los acontecimientos que ocurrieron en su juventud y en la vida de su hijo/a están relacionados con la salud física y comportamiento de usted y su hijo.

 

Who can participate:

You are the parent or primary caregiver of a child/youth who is between 12 and 26 years of age, the child/youth has an intellectual and/or a developmental disability, and the child/youth is not a ward of the state.

 

Si usted es el/la padre/madre o guardián de un joven que tiene entre 12 a 26 años de edad, el/la joven tiene discapacidad intelectual y/o del desarrollo y el/la joven no está en custodia del estado.

 

Start date: July 21, 2016

End date: July 14, 2017

 

Details:

Participation in this research study includes completing questionnaires about yourself and about your child.  These questionnaires may take approximately 75 minutes to complete in total and can be completed online.  All you responses will be kept confidential.  As a thank you for your time, you will receive a gift card after the completion of the questionnaires via postal mail.

 

Como participantes en este estudio, se le pedirá que complete cuestionarios que preguntan acerca de usted y de su hijo/a.  Estos cuestionarios pueden tardar unos 75 minutos en completarse en total y se pueden completar por el internet.  Todas sus respuestas serán confidenciales. Como agradecimiento por su tiempo, usted recibirá una tarjeta de regalo por correo al completar los cuestionarios.

For more information or if you would like to be considered for participation, please contact:

Dr. Kruti Acharya, MD
Assistant Professor
Department of Disability and Human Development, University of Illinois at Chicago
e-mail: acharyak@uic.edu
phone: (312) 413-1495

Dr. Sandra Vanegas, PhD

Postdoctoral Research Fellow
Department of Disability and Human Development, University of Illinois at Chicago
e-mail: svanegas@uic.edu
phone: (312) 355-2643 (
Español)

 

IRB Approval: # 2015-0606

 

 

Baylor College of Medicine

Houston, TX

Study title: Visual Perception in Autism Spectrum Conditions

Location: T101, Baylor College of Medicine, Houston TX 77025

Purpose: To investigate differences in visual processing in children and teenagers with autism spectrum conditions

Who can participate: Individuals with and without autism spectrum conditions between the ages of 5 and 20

Start date: June 03, 2016

End date: December 31, 2017

Details:

Dr. Dora Angelaki’s laboratory at Baylor College of medicine is recruiting children and teenagers for a behavioral study. The goal of the study is to understand how individuals with autism perceive objects in the world around them.

Participants will play a computer game in which they will see an object that will rotate. They will indicate the direction of rotation using arrow keys on a keyboard.

The study will last an hour and participants will receive $15 as well as parking compensation.

Experiments can be schedule after hours and on weekends to accommodate family’s schedules

For more information or if you would like to be considered for participation, please contact:

Jaclyn Patterson
Baylor College of Medicine
e-mail: jspatter@bcm.edu  
phone: 214-683-5225

IRB Approval: #H-29411

  

  

George Fox University

Newberg, OR

 

Study title: Depression, Anxiety, and Occupational Functioning for Transitional-Aged Youth with Autism

 

Location: Survey sent via mail

  

Purpose: To explore the impact of the training program components on anxiety, depression, friendships, and job/education functioning, specific to young adults with ASD in the transition to adulthood.

  

Who can participate: Ages 18 to 25 and have a previous medical diagnosis of ASD. Participants must be fluent and not have a diagnosis of intellectual disabilities.

 

Start date: In progress

End date: 12/31/16

 

Details: We are gathering data for a control group. Participants will be sent a 5$ gift card to Amazon.

For more information or if you would like to be considered for participation, please contact:

Tyson Payne, MA

Doctoral Student of Clinical Psychology

George Fox University

Tpayne11@georgefox.edu

435-512-0467

IRB Approval: Yes

  

The College at Brockport - State U. of New York

Brockport, NY

Study title: Evaluation of Synchronous Online Parent Skill Training

Purpose: Evaluate the effectiveness of an online parent training program to increase adaptive behaviors and decrease problem behaviors for children with autism.

Who can participate: The researchers are seeking a total of 9 families with children with autism (sole diagnosis) where the parent(s) has not had any previous exposure to parent training program.

Start date: June 1, 2014

End date: TBD

Details: There is a considerable time commitment associated with participating in this project occurring over this 4 month-long study involving completion of pre-assessments, review of six tutorials, assessments of your behaviors (5-10 sessions) with sessions lasting 15 minutes in duration each, online coaching with a behavior specialist (approximately 6-hour long sessions), and follow up assessment 2 weeks later lasting 15 minutes each in duration.

The benefits of automated instruction include that it: (a) is a way to increase access to services for parents, especially in rural or other under-served areas; (b) can be self-paced and reviewed repeatedly; (c) can be programmed to provide immediate feedback to enhance learning; and (d) can be provided in the home setting where the desired behavior is expected to occur.  Some research has demonstrated computer-based parent instruction to be useful for teaching parents about child skill development. Although there are no monetary costs with participating in this study, there may be a possibility that you do not learn from the material, do not enjoy the program, or your child’s desired behaviors do not increase. 

For more information or if you would like to be considered for participation, please contact:

Dr. Marcie Desrochers, BCBA-D

Associate Psychology Professor

The College at Brockport—SUNY

mdesroch@brockport.edu

585-395-5634

Erin DiCesare, M.A., BCBA

Behavior Specialist

Mary Cariola Children’s Center

EDiCesare@marycariola.org

585-271-2897

IRB Approval: # 2012-11 (The College at Brockport –SUNY)